Rare Enough
The Rare Enough Podcast, hosted by DJ Stewart, a GBM survivor, dives deep into the world of brain cancer awareness, support, and research, inspired by the mission of the Head for the Cure Foundation.
Each episode features compelling conversations with patients, caregivers, researchers, and advocates, sharing their unique experiences and insights. We explore a variety of topics, from the latest advancements in brain cancer treatment to personal stories of resilience and hope!
Episodes
20 episodes
Building Hope: A Conversation with Head for the Cure Founder Matt Anthony
In the final Rare Enough Podcast episode of the year, we sit down with Matt Anthony, founder of Head for the Cure, to reflect on the journey from the foundation's early days to where it stands today. Join us as we celebrate the incredible succe...
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49:39
Navigating Grief with Luke Anderson
In this episode, we have a heartfelt conversation with Luke Anderson, the son of Lori Stevens, who bravely fought but ultimately lost her battle with brain cancer. Luke shares his personal journey and the creation of the Lori Project, an ...
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30:27
Patient & Caregiver Couple Embrace "Faith Over Fear" with Brian and Emily Godawski
In this episode we introduce Brian and Emily Godawski- an inspiring duo who faced brain cancer with unwavering resilience. Brian, a brain cancer survivor, and Emily, his devoted caregiver, overcame immense challenges by embracing "faith o...
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48:11
How the Fisher Family Channeled Their Grief into "Team Little Owl" to Advocate for Childhood Cancer Awareness
In honor of Childhood Brain Cancer Awareness Month, we introduce Kelly and Evie Fisher. Kelly and Evie share the poignant and inspiring story of Allie, Kelly's daughter and Evie's little sister, who bravely battled brain cancer. Thr...
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34:57
A Passion for Learning: How Simon Khagi, MD, Became a Leader in Brain Tumor Treatments at Hoag Cancer Institute
Meet Simon Khagi, MD, Medical Director of Neuro-Oncology at Hoag Family Cancer Institute and a triple-board-certified oncologist. He specializes in primary brain, spine, lung, and advanced skin cancers and has extensive experience with gl...
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35:45
Navigating Brain Cancer Together: Michael and Vanessa Hugo’s Journey Through Brain Cancer
This is a special anniversary episode celebrating the first year of the Rare Enough Podcast! For our fourteenth episode, we introduce Michael and Vanessa Hugo! The Hugo's are a patient and caregiver dynamic duo that work day in and ...
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52:33
Transforming Tragedy: Colin Gerner, Founder of StacheStrong, and His Journey After Losing His Brother
For this episode, we introduce Colin Gerner, the CEO and co-founder of StacheStrong, who is leading a dedicated fight against brain cancer. Under his leadership, StacheStrong has become a prominent force in raising awareness and funding for cri...
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44:01
Survivor Roundtable with DJ Stewart, Blake Burke, Molly Marco, and Josiah Mihok
For Brain Tumor Awareness Month, we are highlighting not just one but three incredible brain cancer survivors! Our latest survivor episode features three extraordinary individuals: Blake Burke (Oligodendroglioma), Molly Marco (Astrocytoma), and...
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52:56
Changing the Face of Brain Tumor Treatments with Novocure President Frank Leonard
Meet Frank Leonard, the President for Novocure Oncology. Frank leads the global business operations for a medical device company pioneering innovative treatment modalities for solid tumor cancers, including glioblastoma. Learn about Tumor Treat...
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39:06
Journey as a Caregiver to Both Parents and Founder of Slay Society with Laura Dill
In our tenth episode, we introduce Laura Dill, full time caregiver to both of her parents who were diagnosed with the same incurable brain cancer only 14 days apart. Listen along to see how she triumphantly turned her tragedy around...
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50:15
Peddling Past a Brain Tumor Diagnosis with Mountain Biker Zach Round
Meet Zach Round, a survivor and thriver who triumphed over brain cancer. In recounting his story, Zach reveals how he faced adversity head-on, while never allowing obstacles to stop him from living his best life.“I have had to dig deep e...
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53:27
Transforming Brain Tumor Care Through Technology: Insights from GT Medical Technologies President Shane Brown
This episode, we introduce Shane Brown, President at GT Med Tech, who has devoted his career to combating brain cancer. Shane is driven by his profound commitment to the company's mission of enhancing the lives of individuals with brain t...
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41:42
(BONUS) Inspiring Journey as a Blind Athlete with Paralympian Skateboarder Anthony Ferraro
Get to know Anthony Ferraro, a remarkable individual who defies expectations as a Blind pro athlete and inspirational speaker. Ferraro shares his journey of overcoming adversity and the unique challenges he has faced in his pursuit of suc...
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54:58
Working at the Center That Helped Her Mother: Michelle Palacino of the Ivy Brain Tumor Center
Meet Michelle, a fellow caregiver in the brain cancer community. Michelle's story takes a unique turn—starting her career at the Ivy Brain Tumor Center just as her own mother is diagnosed with Glioblastoma (GBM). Hear about her experiences, cha...
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40:08
Incredible Insights: Vinay Puduvalli, MD on Brain Tumor Treatments at MD Anderson
Meet Dr. Puduvali, a renowned Neuro-Oncologist and a proud supporter of Head for the Cure. Discover his passion for understanding and addressing the complexities of brain tumors and making a significant impact in the field of neuro-oncology.
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42:43
Caregiver, Author, and Public Speaker: Harry Campbell's Path to Head for the Cure
Meet Harry Campbell: a distinguished board member of Head for the Cure, renowned speaker and writer on leadership, culture, and mindset, and the loving husband of Kris Campbell, a brain cancer survivor.In this episode, we explore Harry's...
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44:09
A Journey Through A Childhood Cancer Diagnosis with Anna Blackwell
Anna was just twelve years old when she was diagnosed with a ganglioglioma (slow-growing brain tumor) the size of a golf ball. Listen along as her story unfolds where she talks about her countless struggles and how she coped with her diagnosis ...
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36:51
How Being a Caregiver Inspired Courtney Watson To Change Her Career
Courtney Watson was a caregiver to her mom in her early 20’s while she was battling Glioblastoma in 2016. After her mom’s passing it led her to want to make a change and now she is Head for the Cure’s Sr. Manager of Partnerships & Community...
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26:19
Love, Strength, and Hope: Erin Stewart’s Journey Through Her Husband's Brain Cancer Diagnosis
Meet Erin Stewart, wife and caregiver to Host DJ Stewart as well as the Program's & Advocacy Coordinator for Head for the Cure. Get to know your host and listen along as they share their story with Brain Cancer.
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39:14